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My 13-Month-Old Baby Shakes Uncontrollably After Waking Up

by Ashley
(Missouri)

My 13 month old daughter shakes uncontrollably after waking up. It’s not an all the time thing.

It started happening when she was about 7 months old, my husband and I noticed it. Then for a while she was doing it throughout the day. My friend and I were having lunch and she stopped what she was doing and looked at my daughter weird and said “what is she doing?” I said that I didn’t know?

It usually happens after she wakes up from either a nap or when she gets up in the morning. My friend made a comment that her son used to do that same kind of shake. She said that she was told it was from them being so sleepy and maybe going potty in their diapers and it kind of shocks them. My baby just woke up from her nap about 20 minutes ago and it happened again. The periods are getting longer and she just shakes… kind of like an adult shakes when we get cold.

I just would like to know if it’s something I should inform the doctor next time she goes, or if its just her way of waking up? This is my first child so I’m still learning a lot. Any info I can get I’d greatly appreciate!

thanks

Ashley P.

Baby Help Line:

Reasons Why Baby May Be Shaking And What To Do

I understand that you are worried and of course anything that seems odd with a baby’s behavior is good to discuss at the health check ups.

But in additions to seizures, which may be what you think your baby has when shaking, there are many other reasons why a baby may be shaking too.

When newborn, babies do all kinds of odd movements, including shaking, because they have no control of their limbs and their nervous system is immature.

Growing older, there is also something called infantlie spasms, which often occur when the baby is about to fall asleep or wake up – maybe this is what is happening to your baby.

Babies can also get excited and shake or tremble when trying really hard to reach something or grab something for example.

If a shaking is from a seizure, it is likely to have some characterisics:

  • It occurs at random – not for example only while feeding.
  • It can’t be stopped. If you can stop your baby’s hand from shaking, for example, it is not likely to be caused by a seizure.
  • Bilateral, rythmic or symmetric shakes are more likely to be related to seizures
  • The baby is not well in other ways.
  • Baby is showing other signs of seizures, such as eye rolling, for example.

In any case, if I were you, I’d try to catch the shaking on film and pay a visit to a pediatrician. Also take notes on when the shaking happens, if you can stop it by talking to her for example, if she seems disturbed by it, how often it occurs etc. If a pediatrician thinks the shaking needs further examination, she can get an EEG and also have her meet a neurologist.

Does your daughter seem healthy otherwise? Does she gain weight and meet her mile stones? If she does, the risk is probably quite low that something is wrong. But I don’t think one can ever be too careful with a baby.

I wish you good luck! Please post back and tell us how things go.

Paula
(Answer approved by our Medical Reference Team)

More Shaking Babies

Find comments below.

Comments

Jan 20, 2010

My 18 mth ols does this too.

by: Crystal


I took her to the Dr for it yesterday and they are now testing her glucose levels. We have a family history of type I and II Diabetes and she wants to rule it out. Their blood sugar could be falling during sleep since thats the longest period theu are without food, If thats not the case then it could be jusy some weird ideology that she eventually will grow out of, Hopefully.


Jan 27, 2010

granddaughter shake uncontrollably after nap also
by: kim


My granddaughter wakes up and shakes, every muscle in her body seems affected when this happens, from her fingers to her little toes. What does this mean? Any information out there on this matter?


May 09, 2010

13 month old boy

by: mel


I have just googled this and its brought up your comments. I have noticed that my little one shakes when he wakes, he has woken naturally – then shakes or slowly twitches his arms and legs – difficult to explain and certainly not distressing to him and nothing I feel I need to rush round about – rather like an adult when they are cold. He does not cry and responds to me. This is about the 4th time I have seen this. My little one was premature and had a intraventricular bleed – his last brain scan was normal and although obviously a little behind with his milestones due to his prematurity is a bright responsive little boy. I have an appointment in may with the paeds and nerologist and will mention this – I will post back and let you know what they say. Obviously I am looking for very little thing – I used to be a midwife and have seen babies have fits and convulsions and I am worried this is a mild sort of fit- anyway – hopefully its noraml – I like to think that it is to do with the imature brain – so fingers crossed.


Jun 01, 2010

my 4 month old will do this to.

by: Anonymous


My 4 mo will shake when he wakes up, he doesn’t seem real responsive just a somewhat blank stare until it is over with.


Jun 04, 2010

My 4 year old has done this since birth
by: Faylee


I’m curious as well. My daughter is now 4 years old and has shaken upon awakening since birth. When she was a baby my friends and family said it’s just an infant thing and it would go away once she gained motor control. It’s not as bad if she wakes up on her own, but it’s really bad if she’s been woken up. I asked the doctor at her last checkup and she was clueless. She checked her for diabetes and hypoglycemia and those tests were normal. She wasn’t concerned and said I shouldn’t be either unless other symptoms show. It still worries me though.


Aug 22, 2010

my baby shakes too
by: Anonymous


i’m worried too. My 10-month-old baby shakes when he wakes up or plays or is upset. he also has reflux (GERD), has been slow to gain weight, and throws up every once in a while. The pediatrician gave me medicine for reflux, but that didn’t really help, I’m taking him to craniosacral therapists, and i am going to schedule an appointment with a neurologist. he also has a cold that won’t go away. I’m really worried about him.


Sep 03, 2010

I’m worried too!

by: MEmomma


I just googled this very same topic. My daughter is 14 months old and has been doing this a lot recently. It has me a bit worried that its low blood sugar because of our family history of diabetes. I’m going to make her an appointment tomorrow. I’ll let you know if I find anything out.


Sep 20, 2010

my 10 month old son does this also

by: tanya


When i was pregnant i would feel twitching in my belly. i know it was the baby twitching. doctor said it was ok. when he was born he had leg spasms, where it would shake uncontrolable. but then stopped after 3 months. around 6 months he started this shaking all over after he woke up and when he is frustrated and even when he is just playing. he shakes his arms and hands a lot. even so much that he watches his own hands shake. when he does it and i am close to him i put my hands on his arms or hands and it stops. the doctor told me to do that and see what the reaction is. does it stop or continue even with me putting pressure on it. I am taking him to the doctors this week to see what else we can do. i will ask about the diabetes, because my father had it. thank you for that information. i will also check back and update any other info i rcv from the doctor. good luck to all the mothers that are dealing with this.. let us all pray its nothing.


Sep 20, 2010

what helped my son (11 mo)

by: Anonymous


The craniosacral has helped alot with the shaking (he barely shakes now).His cold is also gone and he’s not throwing up anymore. – I would recommend to go to a CST and a neurologist. To find a CST you could google Upledger institute. If anyone decides to try to go to one please give me feedback.


Sep 25, 2010

shakes

by: Anonymous


my babys legs used to shake quite often from birth, took him to the doctors and paediatrician neurologist and they said it’s just his central nervous system developing. It stopped at 3 months but the other day (he’s now 7 months) I woke him up to get him out of the car and he was shaking/twitching all over. it stopped when I picked him up but I’m really worried again now. I was beside myself with worry when he was doing it the first time.


Nov 13, 2010

13 months and still shakes

by: Anonymous


My son has been doing this since he was about 2-3 months old. It seems to be worse when he is woken up rather than when he wakes on his own. Has anyone had a diagnosis yet?


Dec 17, 2010

My 2yr old still shakes

by: Jessica


Im glad I finally decided to do some research and stumble upon this. Diabetes never crossed my mind. Unfortunally my mom recently found out she is diabetic. God I hope not. Like everyone else I didn’t think it was anything to worry about but now i’m not sure. He has been shaking since I can remember everytime he wakes in the morning, in the middle of the night, and from his naps. Also I have another concern, my son doesn’t sleep well he wakes up kicking and hitting and always wanting a drink. He drinks alot and im really freaking out right about now. What do you think?


Jan 05, 2011

My 17 month old daughter does this too!

by: Anonymous


My daughter has been shaking when she wakes up since I can remember. I always just figured she was adjusting to being awake and normally she is fine after a little bit of cuddle time. She woke up from a nap at my MIL’s the other day and was shaky and my MIL got very concerned, so now of course, I am feeling concerned about it! I would love to know if anyone has any info about it?


Jan 13, 2011

uncontrollable shaking upon awakening in babies

by: Anonymous


hello, my daughter did this after she was born. She would shake uncontrollable, and had a look in her eyes like she was dazed and confused. It would take some cuddling as well, and a few minutes. I am pretty sure it is neurological. She was quite a large baby when born for me to have, the dr. wasn’t ready to do a c-section, and it was a very difficult birth. She was too large for my vaginal area, I split through my rectum muscles. She only came out after the suction machine pulled on her skull and a nurse climbed up on my belly and pushed her out.I often think the tramatic delivery had something to do with it because I had the “baby shakes” after i had her. I shook uncontrollable when I would stand up and try to walk for a couple of days. I also had passed out during the birth from the pain. The doctor said she ripped me from the inside out.

A few years later, I started having uncontrollable shaking as well, that would lead to coma states. The doctors treated me and tested me for hypoglocemia and diebetes, but eventually found out that it was all neurological. I have narcolepsy. Narcolepsy is where the brain can’t control the sleep/wake cycles in the brain. My daughter hasn’t been diagnosed with it,but the dr. said she has classic syptoms of it. After 20 years it took to get a diagnosis for me, I look back and see similarities that identify with early stages of narcolepsy. This is all just food for thought.


Mar 10, 2011

My son is 5 months

by: Amy


My son is 5 months old and just started shaking upon waking up. He has shaken 4 times in the past 72 hours and prior to this never done anything like it before. The first time seemed to be the worst and lasted 10 or so seconds. I thought it was lack of sleep so I started a sleep diary and it still happened (not as bad) when he had gotten plenty of sleep. Nothing else wrong and he doesn’t seem bothered by it. His eyes don’t roll and he remains focused on me and my husband. Once he is picked up and held close it stops. I am calling the Dr. again tomorrow to let them know it has happened again. The Dr. told me to keep my mommy entenas up but I really don’t think it is that serious just unexplainable. Babies do all sorts of things that no one can explain? My mother remembers my sister and I doing it when we were babies too so that is a relief to know because we have no health problems that we are aware of. My child is also very active on the go all of the time. He is a twin and by far more active so maybe his brain is going when his body is not??? I hope I helped calm a mom out there. I’ll be praying for our children they are all so precious and remember even though we don’t know what is going on with our babies God does and he will provide :)


Mar 13, 2011

TO ALL MOMS:

by: Anonymous


Whenever your baby shakes, it doesn’t mean he’s having a seizure, it doesn’t mean something is wrong with him/her.
To calm your child down hold him/her close and stroke her down her back and down her body. This should calm the shaking down. Shaking could sometimes be becaused they are confused (i.e. upon waking up), scared (maybe by some sudden movement or just nervous, especially if they tend to be the more cautious type, or working hard. It’s good to give your child a massage with lotion on her bare skin twice daily. It’s good for input, bonding, and emotional health.


Mar 23, 2011

My 23 month old shakes too.

by: Anonymous


I was recently told, on at least 2 occasions, by the daycare center that after my son shakes after his nap. Today they said he did it for about 20 minutes. I know that they sometimes wake him from his nap because he will sleep for 3 hours or more if they let him. I was also tole that one time, he had a blank stare on his face. I have not observed this myself and I think it’s because I don’t wake him from his naps. I let him wake on his own.


May 07, 2011

sounds similar

by: Anonymous


my 13 month old had a seizure when he was 9 months old for 2 hours he was rushed to the bostons childrens hospital in a helicopter wen they got it under control, he was on medication and i have an emergency seizure injection if it happens again. they never found the cause of it and have been very cautious ever since and the smallest thing scares me with him…we took him off the med because of the side effect later on in life are awful and he has been waking up lately to shaking, yesterday it was so bad we thought it was a seizure but he was crying hysterically…from the sounds of it this all seems so common in babies i just wish there was an answer for it all


Jun 04, 2011

Shaking and testing
by: Anonymous


I have 4 year old son. He has a very complicated medical background from mild cerebral palsy, immune deficiency and GI problems. He has been shaking during his sleep and when awakes. He starts shaking, then sits up, vomits and screams and screams. Nothing calms him down, after about 2 minutes he stops crying and goes back to sleep. Hr doesn’t remember any of it and often wonders why he has on different pajamas in the morning (I changed them since he vomited). I took videos of these episodes to the doctor, who then ordered an EEG and sleep study with EEG during sleep. There was no seizure activity. The only thing noted was that my son has asthma. They said his oxygen level would drop, he would wake up and start to cough to catch his breath and vomit. When this all occurred he was in stage 1 sleep and wouldn’t remember any of this. He is now on daily meds (oral, inhaler & nebulizer). We have not seen any changes so far. I will keep you posted and good luck to all of you!


Jun 27, 2011

same prob…

by: Anonymous


I’m not a kid nor a baby… Just want to share… I woke up this morning instantly, as like i wasn’t sleeping at all, with my right hand moving on its own.. I don’t know what’s happening as I was panicking… I really don’t know whats happening with my right hand.. This happened twice already.. Just for about 3 mins or so then it stops.. I can’t control it while its moving. It’s like being paralyzed at all. pls help.. ty


Jul 18, 2011

2 Year Old Son Still Does It Occasionally

by: Michelle


Our 2 year old son does this occasionally. I plan on mentioning it to the ped. on our next well-baby visit (soon). The shaking is more noticeable in his hands and I am beginning to think it is low blood sugar. It’s a classic sign of low blood sugar and he seems to quit as soon as he eats. I was googling it tonight because I wondered if it was a common thing, and I found this. I hope you guys will do feedback when you find out. This really helps! Thanks!


Aug 30, 2011

to anonymous… June 2011:

by: Anonymous


I have had this happen to me a couple of times recently. I am 53 and could be my nervous system is getting stressed. I don’t know what causes it, but it does freak me out, too! It’s like watching my arm go out of control. I do have an older brother who is in the final stages of MS (not saying this is related to MS), and he just recently started having his right arm (same as mine) go up in the air and point at things. (I don’t have MS)> I asked him if he knew his arm was doing this, and he said, “Yes, it does it on it’s own.” I would get a scan or something to make sure you aren’t having something happening with your “brain”, because this is what my brother is having… the MS has invaded his “brain” and is causing all sorts of weird stuff. I hope this helps.


Sep 03, 2011

answers?
by: Anonymous


Has anyone found out why this keeps happening my son has done it since he was 2 months not 6 and I thought nothing of it until one day i could not get him to stop at all his dad has diabetes and his grandfather and great grandmother used too should i be seeing if he has it too?


Sep 18, 2011

My son too

by: maria


Hello everybody,

My son (2.5 years old) also shakes when waking up. I never thought it could be a problem, however I wanted to know why this happens and that is why I have googled to know. I have tried in Spanish and french and found nothing. Only in English I have found these comments.
I am going to ask the doctor as soon as possible.

I do not give sugar to my son. He eats lots of fruits, and I consider it is not necessary to give him extra sugar. He also eats biscuits and some chocolate from time to time. Could it be that his body needs more sugar??

He is a very bad ‘sleeper’. Never wants to go to bed and it takes him more than one hour everytime to fall asleep (also for the afternoon nap). Sometimes he sleeps through the entire night, but most nights he wakes up at least once…

I hope you can continue to add info to this page.


Sep 20, 2011

Same here…you’d think there’d be more information on this!

by: Jessica


My story is the exact story of the one above me! 2.5 year old ….shakes and has a blank stare when she first wakes up. It’s not EVERY time but I notice it at least 2 times a week when I’m right beside her when she wakes up. It takes about maybe 15 seconds for her to be completely over it…and i’ll pick her up and she’ll slowly come out of it and be more responsive. I hope this is something they grow out of. I’ve always thought it was just he being scared and trying to get her bearings of where she’s at when she wakes up. I have no idea! Now that i’ve read all this i’m a little scared!


Oct 23, 2011

My 5 year old has started to have this episodes

by: Anonymous


I am desperate, He does this for about 10 minutes it looks like he has to throw up, Sometimes he does others he just spits foam.. He has the blank stare, he moans, others he cries.. If someone has found the reasons please post this.. He is getting treated by a neurologist already. I will be back with his response… thanks


Oct 26, 2011

I just posted

by: Lisa


I just posted a forum on this! has anyone found anything out? My 4 month old daughter was shaking tonight when she got up to eat, was plannin on a bath but just held her close till she was comfortable and fell back asleep!!?!?

Information would be greatly appreciated!

Really surprised that there is not more information on this matter.!
but i am happy to hear its more common then i thought it would be ..

Being a 22 y/o first time mom, things scare me!


Oct 27, 2011

2.5 year old

by: Anonymous


My two year old started shaking after playing. he has never done it before not even after a nap. It started in his leg and then he started shaking all over and had this blank stare on his face. he did it four times in a ten minute period and it lasted for a while each time. he was standing up and could talk after and said mommy “im shaking” but he definitely wasnt doing it on purpose. could it just be muscle spasms from playing too hard kind of like after an adult exercises sometimes?
any input would be greatly appreciated !


Nov 15, 2011

my boy aged 4 has had same thing shaken when he awakes

by: milly


my son is 4 now and since he was about 10 months old he has done the same thing and still dose now iv taken him to the doctors and they don’t seem to no what it is but its so much better to no you all have had excperants of this to and makes me more at easy to no its not that uncommon and its got to be harmless


Nov 22, 2011

we shake 2!

by: heidi


hello i just googled this as my 10 month old daughter wakes up and shakes it doesn’t happen all the time but my mum said it used 2 happen 2 me when i was younger right up until i was at school i must have grown out of it as it doesn’t happen ne more i thought my daughter must just take after me i think it is when u wake up 2 quick just takes ur body time 2 adjust I’m not sure and I’m curious so googled it i will b asking the doctor but don’t think its ne thing 2 worry about


Dec 13, 2011

Shuddering Attacks!!!

by: Cathy


My 4 month old just started this a week ago, upon awakening from a nap she has seizure like events in which her eyes blink rapidly, her lips are quivering and she is shaking all over. It scares me so bad, she is being seen by a neurologist to rule out seizures, but he is seeming to think it is what they call “Shudder Attacks”, nothing can be done for this, they have to outgrow it. The only thing is my daughter events are not always the same, sometimes she just shakes all over and it last for 1 to 1.5 min. She is sometimes limp after the latter episode. Has anyone has had this happen?


Dec 18, 2011

partial seizures

by: Anonymous


My 2 year old has had the same shaking upon waking for about a year now. 6 months ago she began waking up in the middle of the night crying, shaking uncontrollably with a blank stare and vomiting. This would happen at least 2-3 times a week. I took her to the neurologist and they did an EEG on her. It came back abnormal and he diagnosed her with epilepsy. She was having what he called partial seizures. Now she’s on Keppra and doing fine. I would recommend all of you to visit your neurologist and have the EEG done. My daughter’s seizures started out as just the shaking when she awoke but turned into the waking up in the middle of the night. So, definitely go get your child checked.


Dec 18, 2011

Diagnosis

by: Cathy


We have seen the neurologist and found out that instead of shuddering attacks she has benign myoclonus. She has had two EEG that are normal!!! They have stopped the Keppra, was not working due to her not having true seizures. Something she will outgrow with no long-term affects. Just very scary to watch, she does not have them all the time and can go a few days not having them. Hope this helps!!! God Bless!!!


Jan 16, 2012

i shake sometimes when waking

by: Anonymous


sometimes when i 1st wake up, if i’m still tired, especially if i went to bed too late the night before, i’ll shake like i’m cold. i’m like, “OMG i’m so tired, i’m actually shaking.”
i don’t know what causes it but it’s only mildly annoying.


Jan 25, 2012

5 month old shakes sometimes in sleep

by: rys mamma


My son is 5 months old & on a handful of occasions since he was born he has been napping then half wake up with his whole body shaking & fists clenched. Its almost like hes having a nightmare & gets startled. He doesn’t open his eyes & I tell him its okay, cuddle him & he goes right back to sleep. Its really scared me when it happens bc it will last for 15 sec or so and his whole body is shaking. Is this a seizure, bad dream or what? Hes perfectly healthy as well.


Jan 26, 2012

Complex Partial Seizures

by: Cathy


My child was shaking and it started about 4 months old. She has complex partial seizures. They say she may outgrow, she had a normal MRI. Her first 3 EEG was normal, but when they put her on a 24 hour, it was abnormal. She would stare and then go to shaking. Sometimes she would just tremor but not lose eye contact but it developed into seizures.


Jan 28, 2012

CHILD WAKES UP SHAKING

by: Nelson


My son does the same and after all the tests were done he was finally diagnosed with epilepsy, i’m no doctor but i’m pretty sure that is the same situation every other parent on this thread is going through, in the least the child should be taken to the doctor, as waking up shaking is not a normal thing for anyone of any age. Best of luck to everyone !
Nelson


Feb 03, 2012

All 3 kids!

by: Dani


My 3 yr old son, 2 yr old daughter and now my 8 month old son all shake a few times a week upon waking. What is going on?

My 3 yr old did have a febrile seizure because of a high temp at 18 months, my daughter at 24 months had some sort of heat stroke? It was like a seizure, but she was cool to the touch. It was summer time but not too bad.

Now my baby, 8 months shakes his hands fast and brings them to his mouth upon waking. My daughter started this in the ambulance on the way to the er in her after seizure state (but it wasn’t a seizure) her eyes were glazed and fixed and she wasn’t moving except for shaking hands going to her mouth. They said her brain was normal. Does anybody have any answers out there?


Feb 12, 2012

Same problem here

by: Anonymous


My 2 year old son just started about 6 months ago, it has only happened a handful of times for me, and maybe another dozen for my wife, but more often when he gets woken up rather then when he wakes up naturally, he will seem confused, glazed eyes. He shakes very bad and it has lasted for as much as 25 minutes and as little as 2 minutes. The only comfort I can give him is rocking him in the chair, I’ve tried to see if walking it off would help him but that only makes it worse since he’s shaking he can fall over easy. No history of diabetes in my family, once the shaking stops he is afraid to go back to sleep, and will be very cranky for about two hours, he won’t talk to his sister or us during this time. Hope someone has an answer.


Feb 13, 2012

Complex Partial Seizures

by: Cathy


My daughter was having episodes where she was awake but her tongue was moving from side to side, her lips were trembling and her eyes were blinking rapidly, but she always maintained eye contact. They misdiagnosed her with a movement disorder. She was finally diagnosed with the complex partial seizures and has been on Phenobarb twice daily and has not had anymore seizures at this time. Eventually, she went from the trembling/shaking episodes to the full seizures where she would go into a stare and then start shaking. We finally know what is going on and how to treat it. Her first 3 EEG were normal until they did the 24 hour. Her MRI came back normal, they think this is something she will outgrow. Hope this helps!!!


Feb 13, 2012

Complex Partial Seizures

by: Cathy


I meant to add that my daughters episodes always happened upon awakening too. She is progressing normally and you would not know that she has them.


Feb 19, 2012

Parents

by: Anonymous


Instead of getting on here and asking questions go to a doctor, it could be numerous things, for example i have anxiety, i get worried or worked up over something i shake uncontrollably for 15 to 30 mins….. it could be low blood sugar, or it could be that ur not in the room when they wake up(the attachment phase) and they get nervous your not there till they go out and see you. If they were crying real bad just throwing a fit, sometimes after calming down they shake becuse they got to worked up


Mar 03, 2012

My Daughter has Seizures

by: Json


Hello, My Daughter was born with a condition called Agenesis of the Corpus Callosum. She wakes up every morning and from every nap shaking. At least 10 times a day she stops everything and stares into space. While her whole body seems to have locked up and is shaking she is still responsive. She takes 2 different medications to control these Seizures. What im getting at is most of you have children with the same symptoms. It might not be a bad idea to make sure they arent having Mini Seizures


Mar 05, 2012

FOLLOW-UP from Mar 23, 2011

by: DL


I originally posted on 3/23/11. I just wanted to say when I checked with my son’s Pediatrician a week later, he said that it is not unusual for children that young to shudder or shake (as if cold) and stare into space, after waking from a nap. Remember, THIS HAS ONLY HAPPENED AFTER A SHORT (less than 3 hours) NAP. It has not happened at any other time and does not always happen after short naps.

I agree with “3/13/11 TO ALL MOMS” ‘whenever your baby shakes, it doesn’t mean he’s having a seizure, it doesn’t mean something is wrong with him/her’.

Good luck.


Mar 11, 2012

My 15 yo daughter was born with seizures, now 8 month old daughter shakes when waking
by: Keri


First I want to say thank you all for posting your personal stories. It is comforting to know you are not alone in this. My oldest daughter who is now 15 suffered loss of blood/oxygen for seconds to the brain during traumatic birth. She had seizures that looked like only her right arm and leg would stiffen and her eyes would bounce. The hospital did not even notice it, my mother did and she was in NICU for 14 days. SHe still suffers from seizures, but if she remembers her medicine, TEGRETOL/CARBITROL she has not had one in 8 months. I wanted to point out that her ssizures start in her right arm. She can tell one is coming on because her arm will lift and shake on its own. She knows at this point to lay on the ground away from everything. I only mention this to those that are having movement in an extremity. YOU NEED TO GET and EEG to rule out partial seizure. That is what that is. Hers will start with a partial (thankfully) and she will become unconcious and seize for up to 10 minutes.

Now with my baby…when I wake her usually by singing softly to her because she will sleep til noon she shakes. I pick her up out of her crib and place her on changing table. She is still making eye contact and she is trying to grab at my neckless, but it almost seems restrained and in slow motion. She was wet this morning from her diaper leaking, but I am going to video this tomorrow on my phone and take it into the dr. I will repost what he says. Seizures are not hereditary and no other person living or dead has had them in my family.
I will repost next week what the DR says.

If you have any questions you may ask…

God Bless

Keri


Mar 29, 2012

My 6 year old does this

by: Anonymous


My 6 year old son has done this since he was a baby. It seems to happen more when he has not had enough sleep, or is woke up too early.

I have four children, and none of my others ever did this. It is very strange, and it worries me. I don’t think it is a normal thing to happen, but I don’t know what it is.

My son is responsive when he does this, but seems a little out of it. After he is up about 20-25 minutes, it stops. I am diabetic,and have a machine, so this morning, I checked his blood sugar after the episode. It was 99, so it was normal.

Another thing my son has done before, is he will say things “look too far away”. Even if I am sitting right by him, he says I look far away.

I told the doctor about this, but she had no information to offer and didn’t seem concerned, or offer to do any testing.


Mar 31, 2012

waking up shaking and can use legs

by: Anonymous


My son is eight years old and a picture of health. But lately, 4 months or so, would wake up in the middle of the night crying for help because he couldn’t move his legs at all. But now we found out from him that before he could call for help, his whole body has been shaking for about 30 counts (less than a minute) and during this shaking stage he can’t not talk at all. He would try to make noise but his “vocal cord just making rumbling sounds” (his own words). By the time we could hear him crying for help his shaking has stopped and he could talk. But his legs couldn’t move at all. And it seems like he didn’t have any control of his body from the waist down to his feet.

In the day time, he is fine. No shaking or trembling of any kind. He is funny and happy all the time. He is not on any medication… so normal but this. We just brought him to a neurologist and scheduled an appointment for EEG and another one with the sleeping disorder center. I will let you know what is happening. Until then, please post any information you have on this problem. I love the internet for this.

To all the mothers out there with this problem, I feel for you. Hopefully we can educate ourselves and have some understanding with this thing. Talk to you all soon. By the way, we now take turn sleeping with him to see what is really happening before he could call for help.


Apr 04, 2012

Dr referred us to Neurologist

by: Keri


I commented earlier about my 15 year old daughter with seizures, and now the Dr has referred my 9 month old to nuerologist. He says she should not shake/tremble unless she is cold. It is 90 here. She kind of did it when he was trying to look in her ears. She tried to grab his light, and her arms were slightly shaking. Will let you know about Nuerologist visit. Also to the person who commented to me beore about their son. I feel for you. It is so helpless to have a child with a neurological disorder. I have a monitor in my 15 year olds room that has a camera on it. Same as in baies room. She feels better because when she starts to feel a seizure coming on she just has to say my name and I am up and in there in 30 secs. Also….always try to get any odd movement on camera. My camera on my cell phone is awesome so I have recorded this movement and it helps the docs ALOT!@


Apr 14, 2012

Shaking

by: Anonymous


My 2 year old shakes like that from time to time not sure if its always after a nap or not. But does anyone else kids palms of hands, bottom of feet and lips turn grey blue color? Worried.


Apr 15, 2012

Shaking since she was born

by: Faith


My daughter has been shaking since she was born. The shaking was very obvious and I believe that it delayed her developmentally. At around eight months, her shaking subsided significantly and she’s now only doing it when she wakes up. Not anytime she wakes up, only when her sleep was interrupted and she didn’t get her full rest. If she gets up in that state, she’s very irritated and clingy for some time. If she gets enough sleep, she doesn’t shake upon waking and gets up in a great mood. I’m thinking it’s time to see a neurologist. She’s almost 2.5 and still isn’t talking. Every bit of her development was delayed except when she got her teeth. She didn’t roll over until about 8 months and didn’t walk until she was 1 yr 9 months. Otherwise, she’s bright. She understands and responds. She eats well and generally is a happy little one.


Apr 20, 2012

Tremors/spasms

by: Brian W


I am so relieved to find this thread. Finally current conversations in regards to similarities our family is experiencing.

Our son will be 1 on May 7th. The day after Christmas he began to have these episodes in which it looks like he is being tazed. They last from 1 second upto 15. It doesn’t appear that they hurt, but he loses control of his muscles primarily. Sometimes he can turn his head during them. Clapping and snapping seem to help bring him out of them.

We were at Children’s hospital for 3 days. They ran EEG, MRI, and various other test with no apparent cause. It’s scary to watch any child have to deal with this. He is extremely bright, was walking at 10.5 months, teeth coming in, acting out the itsy bitsy spider, just smart it seems. He’s hitting milestones, but we have this issue. They went away for a few weeks and now came back. We have a follow up with the Neuro, and then I think we will see a geneticist. Any thoughts from anyone?


Apr 20, 2012

vaccines

by: Brian W


Have any of you given your children the DTaP shot? Particularly the pertussion portion of it. I looked into it and found some intersting info. Marcresearch called me to release my child’s info and I said no. I think the company has something to do with this that makes the vaccine. Check into it please. The name is Sanofi (Pasteur) I think. Let me know if it is. Thank you sooooo much.


May 10, 2012

My daughter
by: lala


My daughter does this too. She is 8 months old and it really seems to be only when woken up – not when she wakes naturally. I will go to the doctors – no history of seizures/diabetes or anything in my family. She is very advanced physically and mentally and meeting all the right height/weight milestones. I wish I could find more information (mainly reassurance) on this!


Jun 18, 2012

23 years old

by: Anonymous


I found thus forum on a completely unrelated search. But after reading it I feel for all the moms out there and decided maybe my story can somehow help you.

My boyfriend recently told me I sometimes shake when I fall asleep(he said this is how he knows I am asleep). At first I found it strange but than I realized I have always had “the shakes”. Sometimes I can have then randomly for about a second- this has happened as long as I can remember. But other times when it is normal to shake like from a sunburn, being cold or being so sick I will shake more than most. I remember now being caused of over dramatizing as a child. I will also rarely shake in the morning. I am not sure if I wake from shaking or if I shake after I wake. However, I never feel disoriented or lose control of my voice. In fact I never really thought it weird till my boyfriend mentioned it.

My point is to you mothers out there is that if I have the same thing as your kids I never really grew out of it but it in no way disturbs my life. I am in good health.


Aug 17, 2012

to faylee

by: Erica


my daughter is also 4yrs okd and has been shaking the same way since she was a baby…everyone keeps saying she will grow out of it but it doesnt seem like she will. when she wakes up she shakes for a while but if I or someone else wakes her up the shaking is worse and goes for a longer period of time..i spoke to her pedi and he said it will go away not sure if i should relax or get another opinion….im just worried about her. does anyone have any advise as to what might be the problem


Aug 22, 2012

shaking baby
by: luann


my 8 month old has been doing that same thing. I am scared have had a lot of problems, miscarriages, child with cleft lip and palate, sids (sudden infant death syndrom) in past. Help what is wrong?


Sep 02, 2012

Do NOT ingore them

by: PetitMal Seizures


I read numerous posts about people with little ones who shake or tremble and then go into a blank stare which ends with the tremble. These are petitmal seizures and should not be ignored.

Children who go into blank stares and are unresponsive even for seconds, can be having them. Children can outgrow them but in the meantime they need to be watched. They CANNOT be exposed to electronic games such as leapsters, DS, or any flashing/strobe lights.

Children who don’t outgrow petitmal seizures will need medications. A child with any seizure activity needs to be monitored when they are going down stairs, playing on playground equipment, etc. because having a ‘blank moment’ could result in a dangerous fall.

Do not just assume this is normal baby activity. Have it check out and be safe.


Sep 25, 2012

Child’s Profile

by: Anonymous


Maybe it would be helpful for us all to post our child?s profile, if they show some of the symptoms above (it seems from the posts above that there may be a few different situations described).

Sex: Male
Age: 28 months
Age at first occurrence: About 12 months
Age at most recent: 28 months
Frequency: About every 4-6 weeks
Trigger: When woken in the middle of his sleep.
Symptoms: Shivers & shakes (more than just as if he is cold) for about 10 minutes
Consciousness: Fully conscious (obviously sleepy), able to act on instructions.
Nappy/diaper: Probably just weed or loose poo on waking
Mood: Upset and tearful during shaking.
Physical development: Normal
Mental development: Normal
Medication: None
Health: Normal
Diagnosis: Not consulted doctor yet.

Did I miss anything obvious?


Oct 15, 2012

Shakes and Tremors

by: Anonymous


Hi

I realise some of these posts are old but I am hoping some people will look back at let us know how their children are now?

I have a nearly 14 month old girl she had mild tremors from birth. The ped did blood glucose and checked for signs of central nervous system disorders (such as clonus), which were not present. He said it was probably a benign condition that would go away.

She tremors much less now and it is usually upon waking, but I also see a mild tremor at other times, they only last seconds not minutes. This morning she had 4 quick tremors each lasting a second where her hands curled in a bit and she extended through her head, she seemed aware and was perfectly fine afterwards, but it worried me a lot.

I am planning on talking to the ped again soon and I am trying craniosacral therapy. I will let people know how it goes if there is interest. I would be very interested in knowing how older children are that have experienced this as babies- if the have any coordination issues (mild or otherwise) or developmental problems in any area. thanks
Leanne


Oct 17, 2012

My daughter shakes

by: Anonymous


My daughter is 2 years old and here recently she has been shaking during the middle of the night. But the weird thing is, it only happens when she hasn’t had a nap. And throughout the day she complains that her right side of her head and eye hurt. We go to the pediatrician tomorrow but does any one have any ideas or comments on how to control this?


Oct 19, 2012

Over tired and with sinus or ear infection

by: Paula (Easy Baby Life)


Hi,

Many babies wake up more and are unsettled at night if they haven’t slept enough during the day. Maybe that is what is affecting your daughter. If she doesn’t shake after naps, make sure she really gets enough naps and see if the pattern of no shaking continues. You can also try a slightly earlier bedtime in the evening and see if it helps.

Regarding her pain, it could maybe be a sinus infection or an ear infection. How good that you are off to have her examined! Please let us know what the doctor said.

Warm wishes,

Paula


Oct 19, 2012

My daughter shakes

by: Anonymous


Hey Paula,

Thanks so much for getting back with me. We usually put her down by 8:30 pm for bed and she sleeps till 8:30 am so it is so hard getting a nap out of her, by the time it reaches 5:30 she does want to sleep so I let her sleep an hour. We took her to the doctors yesterday and she is wondering if she is having seizures so we are having an EEG tomorrow. I will keep you updated. Thanks so much


Oct 19, 2012

Something the same…

by: Kristen


My son also did something similar to what everyone is talking about. Started when he was younger, maybe even at birth. But when they are first born its harder to tell. It took over a year for the Dr’s to figure out what it was. And just this year he was diagnosed with Myoclonic Jerks, a form of Epliepsy. NOW I DONT like to think if these jerks as types of seizures, but they are. He now takes medicine for it, and seems to be fine. They finally caught something on his 3rd EEG. So please anyone who dosent think that the shaking, or how ever anyone describes it, isnt a big deal. You need to push the dr’s into doing testing!!! The squeaky wheel gets the oil! Dont back down until you get it figured out!!


Oct 28, 2012

My son also shakes

by: Anonymous


My son is 10 months old… he started doing this occasionally a few months ago. It happened again last night and I finally called his doctor today. I am taking him in on Tuesday because the doctor said he wasn’t sure what was going on, but that it didn’t sound normal. So we’ll see what happens. He did say they were going to do an EEG to check for seizure activity (he didn’t think that was what it was because my son is never unresponsive when he’s shaking) and check his blood sugar. I’m leaning more towards the blood sugar because the shaking started not long after he started eating table food. I’ll let you know what we find out!


Oct 29, 2012

Shakes and tremors

by: Anonymous


Hi- I posted last week about my 14 month old having tremors. We have an appointment with our paediatrician but could not get in for a couple of weeks. I also caught one on camera and took her into a hospital to get checked because I did not want to wait that long. All they could do was some urine and blood tests and put my baby on a wait list for an EEG, they said we might not get in until early December! Not happy about having to wait that long but what else can I do? The big public hospitals are the only ones with the equipment so I do not have the choice of going private. I am in Australia, where are the people from which are getting testing done quickly from? Any suggestions? Thanks Leanne


Oct 29, 2012

RE:Shakes and tremors by: Anonymous
by: Anonymous


I am sorry you have to wait to long. I am in Kentucky, USA so here we can get things done pretty quickly. When we went to our doctor about this we got an EEG done in 2 days. We are waiting to get back in with the dr. to see how things went and to see what’s next in the testing. I hope they find something out with your little one. I know this is a hard thing to deal with. Just be patient and keep you baby close by so you know nothing else happens. Keep us posted on what happens.


Nov 22, 2012

my 15 m/o baby shakes and screams

by: Rico Cruz


My 15 month old King of this house has scared me tremendously when he shakes. At times this happens when he wakes up from naps or from a good night sleep. He screams as if he was scared, better yet, terrified and shakes uncontrollably. He gets this blank stare in his eyes and looks at me as if he didn’t recognize me. I am a stay at home dad and primary care giver. I am so worried that something may be wrong. Any advice?


Nov 22, 2012

Re: Rico Cruz
by: Anonymous


It sounds like your baby might be having seizures… Usually when someone comes out of a seizure they’re very confused, and it sounds like your baby is maybe scared of what’s happening. I would call your pediatrician.

I posted before about my 10 month old, and we went to his pediatrician about it. He’s having an EEG and MRI next week to check. His doctor said a lot of babies have “uncomplicated” seizures that are easily controlled. If that’s what happening with your baby, hopefully it’s something they can get under control easily. But I would definitely get it checked out.


Dec 28, 2012

shaking
by: Ang


My 2 year old son has had three fits from febrile temps…but also have noticed him shaking on waking up and been in an agitated state for a while. He sometimes makes strange repetitative movements then carrys on doing what he was doing, he doesnt sleep too well on a night.

We have seen the neuro peadiatrician who said he wasnt too worried as he was reaching his milestones. He was sent for an EEG but wouldn’t sit still for it and screamed so the doctor could not conduct it and now the paediatrician says he doesnt think he will need one.

I see him again in a month but feel a bit confused as to whether it is serious enough for me to be worried.


Dec 29, 2012

Shakes and Tremors

by: Anonymous


Hi – I posted a while back about my 14 mth old (who is now 16 months) and just thought I would update what happened for those that may be experiencing something similar. My daughter had blood tests, urine tests and an EEG and it was all normal, fortunately she also stopped having the tremors. She had 3 craniosacral treatments unsure if that is why they stopped?

The paediatrician thought they could have been caused by a type of reflux that can look like seizures. Since they have stopped I have not pushed for further investigations, I am just hoping they stay away. I hope other people’s children are going well and that you find out what is causing their tremors – good luck!


Dec 29, 2012

same thing
by: Anonymous


My sons 13 months and he started having the shakes after he got his one year old shots. He got 6 at once. I think that is what is making him shake when he wakes up. And the drs just don’t want to tell the truth about it. Next time he goes to the dr I’m going to ask about that. Maybe you should check in to that too. Thanks for your time.


Jan 10, 2013

shaking

by: Anonymous


My 4 year old son and 3 year old daughter both shake when they wake up, I just put it down to them just waking up too gast and still being half asleep. I have 3 other children and none of them do it


Jan 16, 2013

Don’t worry

by: Anonymous


My son would shake after waking up in the morning from age 1-4. He was a low birth weight baby and always small for his age. It was in fact due to low sugar after being asleep for 9+ hours.

I was advised to give him a high protein snack before bed which helped out tremendously. As he got older, he out grew it. However, as a Mom…if you are concerned, see your Pediatrician. Good Luck!


Feb 05, 2013

anyone with HELP
by: Anonymous


It is nice to see there are a lot of people with same problem, however if anyone has ANY OTHER INFORMATION about this topic please post thanks!


Feb 06, 2013

A little help?

by: Anonymous


To the person who just posted

If your child is having tremors I suggest you try to get it on video, most cameras and phones will have this as a function. Then take this to your doctor to view and ask them for a referral to paediatrician (this is how it works in Australia anyway).

If you are really concerned and you have to wait a while for the doctor/paediatrician or if the tremors are frequent take your tape into your local children’s emergency rooms.

There are many reasons a baby or toddler could have tremors, some innocent and some can cause permanent developmental issues if left untreated. I would ask to have a consult with a specialist though not just a general practitioner. Hope this helps, it is hard to say more without details about your situation


Feb 11, 2013

Shaking is caused by various things

by: Wendy


Sometimes they dream of doing certain actions theand then relieve the dream when they wake up, at least for a few seconds.

sometimes they get twiching muscles cos they don’t yet have strong ones therefore one muscle twitch, twitches all connected and then the whole body shakes. If they respond quickly when you wake them up then it isn’t seisures but you might want to get more opinions from yur dctors just to be relieved


Feb 19, 2013

6 month old with seizure activity, staring,etc

by: Domonique


Hi to everyone who has posted and r in need of answers.

Starting from the beginning, i am a 25 yr old mom. my son was born on aug 8 full term. I was suppose to have him vaginal but my bp went extremely high I had eclampsia. I was giving mag sulfate to try n control my bp n prevent me from having seizures n going into a coma. I was told they have to do a c-section. I had 2 spinals done. Once the 2 was done, I thought I was ab to see my son. Unfortunately I felt the first cut to my abd. They had to put me under general anesthesia. My son was born but from what I was told it took them 10+ mins to get him to wake up. Finally he made the first cry and everything was fine. He was released from the hospital the same day I was on aug 12.

My son was fine, healthy n actually working a little over his milestone. At 2 weeks he was smiling, 2 1/2 months he was holding his on bottle without assistance, he was holding his head up at 3 mon. Everything was moving along great. At 3 1/2 months he started to have a little cold, I told him to the pedi where she gave me a sample of peditrex to give to him for 2 weeks, never been sick before this.

Before he became 4 months, on dec 3, we were out of town, I found my son unresponsive in the bed with foam coming from out of his mouth. Only because I’m in nursing school I knew what to do. I tried to arose him, I checked for a pulse, then call for help. I started CPR. He wasn’t waking up r responding. Finally we got to the er n he had to be intubated. We were admitted into PICU from dec 3-19.. Come to find out my son either had a seizure in his sleep first or his sugar bottomed out. He was hypoglycemic with a serum glucose of 9 n a one touch glucose of 23 (which normal is 70-110). He was in hypoglycemic coma. While in the hospital he started twitching in his right hand and leg, then it switched to the other side, then eventually it was his entire body. The dr were unsure which happened first. He was started on Keppra, Dilantin, and phenobarbital to control the small seizure activity he was having. They ran different test, labs, ct scan, MRI, EEG n X-rays everything came back normal. Come to find out the chief pedi of PICU thought that ther peditrex he was prescribed had something to do with his sugar bottoming out. He done his research n I was told that peditrex is not suppose to be giving to children under the age of 1 and it was taking off the market.
Wow huh???that’s what I was thinking.

CONTINUE ON THE NEXT POST


Feb 19, 2013

6 month old

by: Domonique


My son finally woke up out of his coma on dec 16 n was taken off the vent. We stayed in PICU until the 19 so they could continue to monitor him. On the 19th, we were moved to the floor where the chief made rounds to check on him. The neurologist that was assisting him in the PICU, wanted to wean him off down to 1 seizure med but I explained to them that he was stilling having twitching spells in his hands so they left him on Dilantin n phenobarbital. We were discharged from the hospital on dec 23. On dec 25, I took him back to the er cause he was having crying spells that lasted for 2-3 hrs none stop. They told me he was irritable. We got d/c. So on the 26 he continued to cry. I tried doing everything I could to calm him..nothing would work. On the 27 I took him back to the er, they said the same thing he’s irritable. This time he cried for 6hrs straight! We got d/c.

The 28 we made it back home. The first thing I done was change my son’s pedi because of what the chief pedi told me ab that peditrex. So we had an appt with the new pedi. I got a copy of my son’s records before we made it hm. Just so happen the pedi son’s has seizures. She wanted something done ASAP…she called around trying to get us in to see a neurologist everyone she talked to they had a waiting list up to 4 months. In one week she called the neurologist clinic at LSU-HSU where she explained to them that this is a 4 month old baby who needs to be seen immediately. He can’t wait 4 months.

Eventually they finally got us in-in a week. We seen the neurologist.. Basically he asked questions n read the records. So he decided to do another EEG for 24 hrs to see what was going on. That was done on jan 12.. They gave me a sheet to write the time, a description on the event, n hit record on the computer every time he has something. I had at least 200 things on the sheet from jerking, twitching, smacking on the lips, entire body jumping, staring into space, etc.
The neurologist came in after the 24 hrs were up n done a quick scan through the computer comparing it to my
Paper. He said it appears he has some seizures but he would have to sit in watch the entire 24 hr video. he started him on Zonegran another seizure med plus he’s stil on pheno n Dilantin.

While we were in in hospital he scheduled for the endocrinologist to come c my son for his low sugar. We were ony suppose to be in the hospital for 24 hrs but we happened to stay for 3 days cause they wanted to monitor his sugar. The time we were in the hospital his sugar was fine. Upon d/c I was told to monitor his sugar at hm for 2 weeks 3xs a day (before breakfast n dinner then at 3am) he sugar was fine. They also ran thyroid function test on his as well. Those too came back normal. So now we have appts with both the Neuro n endoc drs.

CONTINUE WITH NEXT POST


Feb 19, 2013

6 month old
by: Domonique


2 week Neuro follow-up: MYOCLONUS SEIZURE
He wanted to see how the new med is working n if I see any difference. NONE! Is what I told him. Seem like my sn was getting worse. Since the new med n the pheno…it caused him to having bad n long crying spells. Once he got the pheno, he’s jerks became very strong n cried for 8 -10 hrs. The Neuro told me that the pheno n Dilantin r both drugs that were used way way back in the day for seizures but there are new meds like the Zonegran that are used for myoclonus seizures. So we decided to wean him off pheno it took ab 2 wks to do that.so far the activities r not as strong as they were.

Now my son just cries n cries for ever…nothing calms him. I had to take him to the er 4xs back to back cause it was other I could do to stop him from crying plus I was crying as well cause I was just tired n emotional drained. They called the Neuro n he told them to increase the dose on his new med Zonegran. That worked for a few nights.

Next Neuro follow-up:
wean him off Dilantin so he could be on just one med, which he was completed weaned off wed..so now he’s just on Zonegran. Since he’s been off pheno, he’s improved but the crying is still the same.

Since I started weaning on Dilantin his left leg shakes once I wake him up, while he’s awake, n right before he has the jerking spells. It’s like he has an aura (knows that the seizure is ab to come). He stares n turns his head to one direction almost like he is forcing his entire body to turn completely around. I tap him on his nose to allow him to come back, he would blink his eyes n would focus more on what he as doing. This happens at least 20xs a day. He would also start crying out the blue, lips would shriver, n left leg would shake. Neuro said that it a normal effect of myoclonus seizure. He should grow out of it. He has to get another MRI done of the brain which he was suppose to get done on feb 2 but he just finished having RSV so they couldnt do it. so the beginning of march he should have that done. Pray no brain damage!!!!

His new pedi also got him an appt to see the geneticist. He just seen them on the 14th of this mon. Since no one knows y or how it happened, they r going to see if it was something that was missed at birth. The geneticist done another newborn screening (which can be done again up to a yr), liver function test, thyroid panel, etc. I should find something out sometime this week r the beginning of next week.

We also have appts set up for second opinions at Texas children’s hospital in Houston, TX in April and May..SECOND OPINIONS RE NEVER BAD!!!!!

CONTINUE ON THE NEXT POST


Feb 19, 2013

6 mon old

by: Domonique


My son continues to cry, stare, shriver his lips, and shakes his left leg. We are basically doing a trail n error to see what med is going to work for him. Everyone is saying that it is uncommon for a 4 mon to just out the blue start having seizures. There is something everyone is over looking. The Neuro n geneticist are saying that the seizure would,be been noticed as soon as birth or it could start once they turn 2 r above. Never have they heard of it starting in the middle at almost 4 mon.

Praying that something comes back from the geneticist test results but if not its a mystery. Im just grateful he’s alive!!! It’s been a rough few months but we are going to get to the bottom of everything. He’s going to grow out of this. Don’t wait until its too late to do something…if u feel it dont look normal u have the right to get it checked, if not by ur child pedi, get someone else that will take u serious… We have the right to be concerned ab our child(ren) n their well-being..

We have no diabetics/seizures that run in mine nor his father’s side of the family..only thing that runs in family are HTN n Hyperlipidemia (high cholesterol).

ALL PARENTS: have faith, believe, and trust in the person u worship for he will not let us down.

If u have any other questions or concerns that u think I could answer or u want me to ask the Neuro, endoc, geneticist send me an email.

thankyoufish@yahoo.com

Thanks for allowing me to share this with you. Glad i have people i could talk to ab this because its hard holding everything in, jugging nursing school, he’s appts n mine its a lot. I do a lot of research on what’s going on with my son..I’m trying to put the pieces together along with everyone else. If I could help, just let me know!


Mar 02, 2013

What my Doc Said

by: Samantha


My son is 16 months. He has been doing the same thing for about 2 months now. Mostly when he wakes up or sees someone or something that excites him. My doctor actually observed him doing it at our last appointment when he walked into the room. He told me it was nothing to worry about and described it as an immaturity of the central nervous system. He believes that it will go away with age and I will begin to see it less and less over time. He said when he would worry is if he was in a daze or staring off into space. Normally when my son does it he is playing and completely responsive. My only concern is it seems to be happening more and more. Today it lasted all morning while our friends were here and even this afternoon when it was just him and I. I am going to bring this up to a specialist we are seeing next week for another problem he is having, which is standing up. Hope this helps for those of you in the same position.


Mar 28, 2013

baby waking from knap and shaking

by: Anonymous


My youngest son used 2 shake really bad when he woke from a knap as he was a baby.Never did find out what it was. But thing that did happen as he got older he slept walk and dreamed and talked in his sleep alot. Well so we figured that was all the start of that. found out my husbands side of the family alot of them slept walked. so we had it rough when he was younger. He now is 16 and he still does sleep walk and dream alot.its scary when they do that. so all i have 2 say is good luck hope everyone finds out what is goin on.


Oct 02, 2013

My 18 month old shakes as well, we’ve been referred to a neurologist

by: Lacey


My 18 month old son has been waking up shaking and really wobbly for about 9 months. He will shake all over and if you sit him down he can’t walk well he will fall over or trip over nothing. We have also been seeing an ear nose and throat specialist since he was 8 months old. He constantly has an inner ear infection and is almost always put on a steroid after a visit to the doc. Although lately it has gotten better, his ears have affected his hearing, and he has started developing a small stutter, which is something I plan to mention at our next dr visit. But my answer to you is don’t wait about the neurology appointment. I waited to say anything forever about how my son would shake and now we have to wait until january for his app, they are going to do an overall exam but def. look deep into seizures in his sleep.


Dec 13, 2013

My boy shakes well nursing
by: Mom of 8 month old


my son has been doing this for a while kinda like withdrawals it seems like he usually did the shaking when he would fall asleep and let go and he realized he wasn’t done so he would flip out looking for more, he recently just started shaking well nursing and he fell asleep he was eating well shaking im also a little worried about him as he dosent seem to eat much food at all mostly just wants to nurse all the time..


Feb 20, 2014

Family history of diabetes

by: Anonymous


We also have a huge history of diabetes in my family. I have one brother who’s a juvinille diabetic and three others who had adult inset later in life. Also my mothers brother and father. I myself have been lucky but it worries me that this may be the cause of all the shaking and confusion he seems to have.


Feb 26, 2014

1 year old shakes, stares into space and lips, hands, and feet turn purple
by: Anonymous


My 1 year old daughter has shacking spells that last about a two minute in that time she stares off for about 45 seconds, I noticed the last time she did it that her lips, feet and hands were purple. My home is always warm its never under 72 degrees so it cant be because shes cold. she has an appointment May 21st for a Pediatric Nuerologist, but I told her regular doctor about her turning purple and he said not to worry about it. My daughter also has a condition called Torticollis.


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  • LW

    For anyone experiencing this type of shaking etc with a child 24 months or less, please have them examined by a pediatric neurologist. Travel to see one if you have to, but don’t put it off. Well-meaning regular pediatricians often miss rare neurological disorders that may need immediate intervention. There’s still a good chance the shaking could be benign, but only trust the pediatric neurologist’s assessment. Google videos of infantile spasms and video your own child for the doctor.

  • courtney

    I have a one year old who has what I call shaking episodes only at night it wakes him up.out of his sleep this has been going on since apil I spoke with his doctor who ordered an eeg he also sees a neurologist my.son just recently had a spell in the middle of the night that was different then the others he woke up crying so u picked him up and his entire left side went limp his head just fell he wouldn’t respond to me or open his eyes the doctors want to put him on acid reflux medications to see if that helps has anyone else experience this with there children ?