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Baby is Rolling Eyes Into Back Of His Head – Why?

My 6-month-old son just started rolling his eyes up in the back of his head yesterday. It looks scary and I don’t know if something is wrong. I have never seen him do it before and he had done it at least ten times yesterday and 4 times already today.

Please help, I’m scared that something is wrong.

Baby Help Line:

Eye Rolling In Infants – Possible Causes

I can truly understand that you are worried if your baby has just started rolling his eyes! However, keep in mind that babies can do all sorts of strange things just because they’ve figured out how to do it. My children have for example banged their heads against the floor, pulled their ears hard, stuck their hands so deep into their mouths that they chocked etc… My youngest kept poaching his eyes with his fingers…

Chances are that your baby is just rolling his eyes because he can!

But there are cases when infant eye rolling are a matter of concern. A newborn baby may roll eyes simply because his eyes are not really developed yet, but that is not the case with a 6-month-old.

Some reasons why a baby may be rolling eyes are head injuries, seizures, low blood sugar or hypoglycemia. Your baby hasn’t fallen off the bed or something similar? In such case, definitely take your baby to the ER immediately. You can find more warnings signs after a fall here.

If some neurological problem is causing the eye rolling, then there are usually other symptoms as well, such as trembling or shaking for example. Does it seem like he is doing it intentionally or not? Is there anything at all more going on that is unusual or could indicate illness?

Some examples of conditions sometime found in babies rolling their eyes are Paroxysmal tonic upgaze, Paroxysmal downgaze and infantile spasms. The two first are usually completely benign and also infantile spams often disappear without treatment. But only a doctor can diagnose your baby, so if the eye rolling continues, definitely have it checked up.

Talk to a doctor, that is my best advice. But don’t be too worried, if you’re baby seems to be fine, he probably is. While waiting for the doctor’s appointment, takes notes of both how often and when the rolling occurs (before sleep, after sleep, whilte eating et cetera), as well as of any other signs of illness. Also try to catch the rolling on film and bring along.

I really hope your baby is well. Good luck!

Paula
(Answer approved by our Medical Reference Team)

Other Babies That Are Rolling Eyes

Find comments below.

Comments

Mar 14, 2009

EYES ROLLING IN THE BACK OF HER HEAD

by: CHERYL REILLY


We first noticed my daughter doing this when she was 9 yrs old. They mis diagnosed her with epilepsy and put her on increasing amounts of depikote for the next 5 years, which had horrible side effects on her personality and never stopped the eye rolling. Another Neurolist diagnosed her with a form of tourents syndrome and put her on lexapro. Though this has curbed her anxiety from all her peers and teachers making fun of this problem, it still hasnt stopped the eye rolling episodes. She is now driving a car and we are concerned…please if anyone out there knows of a condition that causes this problem, please email me.

cheryl-reilly@sbcglobal.net


Aug 13, 2009

BABY EYES

by: Anonymous


MY SON IS NOW 7 MONTHS OLD I NOTICED HIM ROLLING HIS EYES BACK AS IF HES LOOKING UP I THOUGHT IT WAS STRANGE BUT IT ALSO LOOKS LIKE HE DOES IT BECAUSE HE KNOWS HE CAN. HE DOES IT A FEW TIMES BUT OTHERWISE HES AS NORMAL AND HEALTHY AS CAN BE IM STILL SOING TO ASK A DOCTOR JUST TO MAKE SURE NOTHING IS WRONG


Sep 11, 2009

Eyes rolling back and crying.

by: Anonymous


Hi, My daughter who is 5 month old daughter has started to rollher eyes back recently, this is really making worry about her. She did a few tinmes at first and was fine with it and now she does it and starts crying with it last night it happened and she started to cry they were a couple of seconds apart. when it hapens she jerks her body as well she seems to be in pain or is she just feeling scared. It really worrying me. I took her to the doctor but she is fine there, the doctors seems to think she is fine but he has not seen her when her eyes role back. I really need advice please can anyone help?


Sep 11, 2009

eyes rolling back

by: Anonymous


My baby does this she is 5 months but she cries when this happens to her and jerks her body can anyone give me any advice?


Oct 14, 2009

rolling eyes
by: Anonymous


my baby is only 3 weeks old and has started rolling his eyes quite a lot when asleep.Is this normal? Is it wind?


Oct 15, 2009

Rolling Eyes Back
by: Anonymous


My daughter is two years old and started rolling her eyes back several months ago. I am concerned because I am not sure whether or not she is having a seizure. She might be doing it on purpose for fun.

I read everyones comments and I can see that no one knows what it is. Tomorrow I am going to the neurologist to find out. If I find out, I will let everyone know.
SM


Oct 16, 2009

REM sleep (the 3 weeks old baby)?

by: Baby Help Line


Hi!

How do you know that your baby is rolling eyes if asleep? If it is simply that you see movement under the eyelids it is completely normal and called REM sleep (Rapid Eye Movement sleep). A newborn baby spends more than 80% of total sleep time in REM, while adults only spend around 20-25% of their time asleep in REM.

Hope this helps!
Paula


Oct 24, 2009

baby is rolling eyes

by: Anonymous


I have a 20 month old son who has has those symtoms and it has happens twice each time it is as if he was dieing the first time it happens.

I took him to the doctors they said he had an ear infection the I read a medical book which said that the baby tends to have problems but can’t tell us as we can so they show fever type symtoms then when the baby rolls the eyes back it is as if they are having a fit the best thing to do is make sure the mouth does not close ie.

Make sure you put some of your fingers in it there might be time they will bite hard don’t worry this is helping don’t let go and also they tend to have a high tempreture then try pouring cold water on there head this will bring that down then they should cry hard once you have done this that them to the doctors next day it may be they have a infection .


Oct 25, 2009

Baby rolling eyes

by: Anonymous


My nephew (8 months) has been doing this too. It happens whenever we lay him on his back. His legs and arms begin to stiffin straight out and his eyes roll way in the back of his head.

I will try to call to him and get his attention but he doesn’t come out of it. It only lasts a few seconds. He sometimes laughs a little when he does it and hes smiling the whole time but its just scary and weird. Any advice?
nellie_pie03(at)yahoo.com


Nov 20, 2009

I am worried
by: Anonymous


My baby who is 8 months has stared to do this too. He did it a few times today and it was really scary. I am sssooo worried. Has anyone been to the doctor and found out something about this?


Mar 14, 2010

rollig eyes up when walking

by: john


my son rolles his eyes back every two to three min.and loses his balance and falls it don,t seem to hurt him only when he fall hard


Mar 17, 2010

Baby rolling eyes down not back
by: Anonymous


My baby is six weeks old and has just started rolling his eyes down (not up and back), so that the whites are showing and some of the pupils. They sort of zig zag a little for a moment but when I touch him or call him, he immediately snaps out of it. This has only happened while he’s lying on his back and I’m changing him. I don’t know if he’s trying to look down at me and his eyes get stuck or what? Does this seem like a seizure or just lack of eye control?


Mar 23, 2010

EYES ROLLING

by: Anonymous


Hi there,i am sure this does not apply to every child but eye rolling can be a sign of Autism. My Grandson has been eyerolling since he was born,he is now nearly 2,the eyerolling has not stopped and now he walks on his tip toes, body rocks for ages and spins around with his eyes rolled up.The Health visitor has at last referred him to hospital.

The only problem is its hard to diagnose Autism before 18months of age.


May 18, 2010

eyes rolling to the back of the head-8months old

by: Anonymous


My son is nearly 15months old,his eyes have been rolling to the back of his head for a few weeks now,i didnt think much of this at first as i thought he was looking up at me and at the lights and fans etc..also my sister is a nurse and sees him every few days she sad i should just keep an eye on it and see if he does it more often and to try and catch it on the video camera and get an appt to the paedeotrician asap.As the video showa exactly what he does.

She said its not normal and he is doing it alot more,i was very worried and still am.Ive been to see my local doctor and have a referal to westmead hospital,my doctor doesnt want to worry me,but said it needs to be checked out asap as its not normal but could be a number of things like-he could be just repeating something he started doing and it could be that he is looking at things up high often,she also asked if he blacks out or shakes,he doesnt,its just the head back and his eyes roll and it happens at all different times of the day and when he is angry or happy,sitting and lying down.

It is just best to get them checked out asap doesnt matter what age,as its better to be safe than sorry,i now have an appt next week and will come back to this site and write up the results,fingers crossed its nothing???


Jul 10, 2010

rolling eyes

by: Corona


My daughter is almost 6years old. Four days ago, My family and I noticed she started rolling her eyes upward and sideways. The first day was very minimal with only 2 episodes noted. The second day, the episodes were slightly more. By the third day, she was rolling her eyes about every 40seconds. I ended up in ER>> Labs were drawn and a CT scan of the head w/ iv contrast was done to rule out neuroblastoma. Fortunately, everything was normal. In ER, two pediatricians examined my daughter, not sure of what could be causing this. They did mention the possibility of a tick bite. Today we saw an opthalmologist>> again her eye exam was normal. Seems like no one really knows what causes rolling of the eyes. My next step is to see a neurologist.


Jan 13, 2011

eyes rolling up

by: m b


my 2 and a half year old has possible rett syndrome , but not confirmed she has severe developmental delay, she suffers from absent seizures and i was wondering if eye’s rolling up is a symptom of a seizure


Jan 25, 2011

7 MONTH WITH SAME PROB

by: Anonymous


baby fell down from couch 3 weeks ago and since then he rolls his eyes like 2 times a day especially when lying on his back,i too his to a doctor who said he’s fine, but am scared. baby is 7 months old


Feb 05, 2011

Doctors are the best answer

by: skinny


Yes, worry about your child and take him to the doctor as soon as possible. Don’t ignore the thinks that make you uncomfortable because bad feelings are always not good. Dont listen to does that give different opinions just take your baby to the doctor. Thats youre best answer you will find.


Feb 12, 2011

my babys eyes going down not up or backwards

by: Anonymous


he recently stared doing this i’m scared i want it to stop i dont know what to do the doctor said hes ok but really is he fine!!! anyone know what i’m talking about let me know whaat i should do!!!


Mar 17, 2011

EYES Rolling back =? PTU

by: Davy


My little boy displays the rolling back of the eyes. And my research has taken me to this web page:
http://www.upgaze.org/ which might help some of your problems. THe condition is called PTU Paroxysmal Tonic Upgaze. Good luck….


Mar 22, 2011

Rolling eyes downward
by: Moe


I have a 1 week and day old baby. The doctor says she is healthy and is growing weel. My concern is the fact that she is rolling her eyes downward and not upword. She does it often then usual. This is my first and it is worry some. The doctor thinks she fine, but it is still a concern. Looking for advice.


Jul 25, 2011

rolling eyes downward
by: Anonymous



Our daughter started rolling her eyes downward at approx 3 1/2 months. It started one day out of the blue and then started getting more frequent. Her eyes would go downward for a few seconds and often you couldn’t see her eyes. Very scary and stressful. Our GP recommended we see a pediatric neurologist. The neuro defined the condition as ‘Tonic Downward Eye Deviation’ which is a very rare condition in which infants generally grow out of with no neurological problems (you can find some case studies online). He did however suggest we have scan to ensure that there was not something else causing the downward gazing. We decided to do a cranial ultrasound which came back completely normal and now our daughter is nearly 6 months old and has we have not seen her roll her eyes downward for a few weeks. If your baby is rolling their eyes downward it is important to see a specialist. But be reassured that in most cases if this is happening (without a loss of upward gaze) it is usually a benign condition which will self correct over time.


Jul 30, 2011

Family History
by: Anonymous


Hi Im an adult with 3 children who are all seeming to have a mild problem, particularly with dairy intolerance, aural allergy syndrome -tomatoes and pollen carrying fruits, causing mild swelling or rash to the mouth, and minor breathing (& anxiety problems)
I myself after having milk go into this semi conscious state feeling anxious or angry just before but the last time I had milk I couldn’t see properly and was very ill and depressed and also after which couldn’t stop the eyes rolling and passing out nearly everyday. I was doing it in the bath, and now have discovered a little bit more about it. That there is first a headache and that it is often brought on by strong emotions or over activity/not enough sleep. When I was a child and adult I have collapsed/and knees giving way and have had a paralyzed collapse too. My daughter was unrousable for a long time but stats were fine at a&e. We have history of stroke in the family and allergies. I know there’s a thing called Crohn’s Disease as well something to do with food, neurology and blood in stools. Or an enzyme deficiency making the food go through the stomach wall as a DRUG straight into the blood stream.

Further more when I changed doctors the new doctor said he had friends (a family) who go mental when they have milk as well and makes them very ill. But medically he cannot commit himself. He said I should prepare meals at home to prevent incidental intake. My situation is obviously more complicated BUT it is offset by certain products. I avoid sulphates, sunset yellow, artificial sweetener, LACTOSE INC PILLS! for some people wheat is also related or at least the chemical processes of those foods. I promise if you change your diet and lead a healthy lifestyle the situation will dramatically improve. FRESH AIR, lack of oxygen and regular movements in case its something to do with circulation but not to much activity! Or interaction. Ideally with a child you should keep them fit well and keep moving throughout the day with regular snacks not high in sugar. And encourage rest and early nights and quiet time/alone time -a peaceful setting. Words can also jumble. A sign that the child needs a long rest. If I do find out anymore I will post -its been 10 years since I discovered that milk makes me pass out. But it does happen without if I have to many problems, keep your child stress free. Last of all it could be something to do with the heart as both me and my neighbor pass out AND are both allergic to milk! Adults avoid alcohol PERIOD. THE TRUTH IS THAT THE DOCTORS DONT KNOW WHAT IT IS. One pediatrician said we’re emotional and might want to buy sleep hormone off the internet for extra sleep. Beginning with M?? Malanine or something. But whatever -GET SEVERAL OPINIONS AND KEEP TRYING!


Sep 09, 2011

tonic downgaze- rolling eyes down

by: Anonymous


My son was born on Sept 2nd and he rolls his eyes downwards randomly. It was a concern to me and his doctor, we are going to do a MRI to see if there is something they can find that might be causing it to happen. The doctor did say he might have tonic downgaze. Right now i don’t know too much but hopefully all goes well.


Nov 10, 2011

Advice!!!
by: Anonymous


Hey guys and parents worried about your kids, Please go search ‘upgaze’ . And consult a doctor. It maybe it.


Dec 21, 2011

eyes rolling upward

by: Mina


My 8 month old baby girl has been having these episodes for about a week. Thought she was having a seizure at first. Her gaze was up and to the side/or rolling back. We were admitted for observation had an EEG and MRI both are normal. The peds Neurologist is referring us to peds opthalmology. Now just waiting and praying all will turn out well.


Jan 06, 2012

Rolling eyes up

by: Chandler Mom of three


My 14 month old just started rolling his eyes up about a week ago. Happy or sad, it doesn’t make a difference, his eyes will sporadically look up quickly, sometimes 3 times in a row.
He had a CT scan, and two ultrasounds of his brain after he was born, and just found two cysts which had formed from two small brain bleeds during birth, very common and we were told would not affect him.

He actually has a follow up appt. with his neurologist in February, and they will look further into this “tic” then.

My now 8 year old, had eye blinking tic’s when he was 4, and I took him to a chiropractor, and they went away within 3 weeks. I am taking my 14 month old to the chiropractor on Monday to see if this will help as well.

If anyone else has any input, please pass your wisdom on. :-)


Feb 21, 2012

advice from a pediatric nurse practioner

by: leanne


hi everyone! I stumbled on this webpage while doing research. After reading everyone’s comments I am very concerned. Eye rolling downward or side to side can be a sign of a neurological problem, this can happen when there is an increase of pressure in the brain. For example tumors or fluid. Please go to your pediatrician immediately because time is of the essence. However, eye rolling is NOT always emergent but it should always be investigated! hope this helps!


Feb 22, 2012

update on baby’s eye rolling

by: Chandler Mom of three


I reported recently that my one year old’s eyes just started darting up randomly, several times a day. I read that tic’s can be allergy related. So I took my son off of dairy immediately, as his tic’s coincided with introducing him to cow’s milk. His ticks stopped 100% and immediately.
I also took him to his neurologist, and she told me that there is new evidence that 90% of tic’s are related to allergies.

I would still take your child to their doctor as well. I am just thankful that my son was just allergic to dairy. God Bless!


Feb 25, 2012

Here is one answer (FEBRILE SEIZURE)

by: Anonymous


I went to my daughters room to make sure she was tucked in nicely, as I did I noticed she was burning up with a fever at 39, she started having muscle twitches in her arms and fingers and I knew someone wasn’t right. I took her out to the living room because she was awake and I turned on her favorite movie. She at first started to watch it, her body started to tense, her eyes started rolling back, she started vomiting, she was unresponsive to her name, unresponsive to us screaming and panicking, her breathing was all over the place. We called paramedics they had checked her out, she became responsive again. The paramedics had told us she has gone through a FEBRILE SEIZURE. I strongly suggest for those who are reading this to read up documents on the FEBRILE SEIZURE and please, please see your family doctor, pediatrician. This was the worst, scariest moment of my life and I will never forget it. I hold my daughter more tight than ever. Its a pain I will never lose.

Yours Truly,

Parents in deep love with their children


Mar 02, 2012

Upgaze

by: Anonymous


I have no idea if what you are describing is anything like this, but Google “upgaze” & click on the first link – v. v. rare, a lot of paediatricians don’t know of its existence.


May 18, 2012

Please help me
by: Lorna


Please help me. The writer of the post on March 17th 2010 has just listed the exact problem my little 9 week old girl is having. Down to the changing table, being able to be called out of it and everything else. I know that 3 years later it is unlikely she will be on here, but if she is could the writer please tell me what the diagnosis was as the doctors I am seeing cannot help me.

I am at my wit’s end as I do not know if this will progress into a full seizure at any point.
Alternatively, does anyone else have any ideas that fit this bill. As my girl can be called out of it, what is it? Thank you so much.

Comment By EasyBabyLifeLorna, I am sorry, but the writer didn’t provide any email address, so there is no way to contact that person. If anyone can help Lorna, please post in this thread!


Jun 11, 2012

eyes going to side of head

by: Anonymous


My son will be two in a week and for the past two months when he runs past things he puts his eyes to the side of his head. Somtimes he stands still and does this too and it is starting to worry me. If he is looking at the television I have also seen him putting his eyes to side of his head and making a strange facial expression. Does anyone have any idea why he is doing this?


Aug 10, 2012

Baby can’t control eyes

by: Anonymous


My son can’t control his eyes since he was 2 weeks old. He is now 8 months old. I took him to an eye doctor and to a eurologist. They did and EEG, cat scan and everything came out good. I don’t understand why he still rolls them back. What’s weird is that when he goes to slepp he wakes up fine. My mom says I did the same as a baby, so maybe he got it from me. I need advice, please help.


Aug 24, 2012

My 8 1/2 month old baby boy rolling his eyes while eating, & after

by: Anonymous


My son rolled his eyes back into his head 2days ago, he was eating & he started rolling his eyes, shaking a little, did it like 3 times, I called his pediatrician, she said keep eye on him, if it continues, to take him to ER. She said it is probably nothing, but he did it today again.

I can’t sleep, because I’m just watching him at night, I don’t want to leave his sight. I told my boyfriend, but he thinks I’m imagining things.

He thinks the baby is just playing with his eyes. Somebody help, I know I should go to Dr, just to be sure.

email me suszie1221 @ yahoo.com


Aug 28, 2012

Our baby diagnosed with Infantile Spasm Syndrome

by: Suzanne


I was on this thread about a month and a half ago when my baby started rolling his eyes up. Though my pediatricians office was not alarmed, we took our son to the ER when his eye rolling progressed to his body going rigid at the same time.

He was having seizures and was diagnosed with Infantile Spasm Syndrome.

This disorder (present in 1 in 2,500 babies) is best treated right at the onset! It does not hurt to see a neurologist, get an EEG and clear the possibility of seizures as they interfere with your baby’s development.

I recommend going in right away if your baby is rolling its eyes and get seizures ruled out!

Blessings,

Suzanne


Sep 21, 2012

Any updates?

by: Anonymous


I have read through these threads and noticed my daughter has a lot in common with some of your children. She is 7 months and has been rolling her eyes upward for about a week.

The eye doctor said no problems were found but is referring us to a neurologist. She has an EEG scheduled on mon.

Does anyone have any updates for me? How did it turn out for everyone? My baby mostly does it lying on her back and sometimes rubs her eyes when it happens. When she’s not doing this, she is otherwise a normal and healthy acting baby.


Nov 16, 2012

eyes rolling to the back of babys head
by: gill


My sons eyes have started rolling to the top of his head and he has a rare neuroligical disorder called hyperexplexia
but i dont think the 2 are related


Feb 06, 2013

Fever with sezuirs
by: Anonymous


Hi all,
I am mother of 3 year old boy,he had his first sezuirs when he was 18 moths… and 2nd when he was 26 months and from then every now and the when ever he is having fever he is having sezuirs … it so trifling… am not able to sleep its worrying me a lot..have been to many doctors but every one says its common… but its scaring me more and more that i am not able to do any thing.. please suggest if any one is going throught same phase ..


Apr 17, 2013

Lorna, did you find the answer???

by: Donna


I am having the exact problems Lorna (from May 18th). Did you find any answers???????


Apr 19, 2013

Hi Donna

by: Lorna


Hi Donna, happy for you to contact me directly. Do you want to spell out your email for me so as to avoid automated spammers picking it up?
In a nutshell, after a week in hospital, ECG tests and a visit to Gt Ormond St they diagnosed her with a benign disorder. meaning it had now gone away and even with videos of it they couldn’t really say what it ever was. Although it was the most awful thing I’ve ever seen my baby do – I never want to see her do it again but I can email you the video if you want to compare?


Apr 19, 2013

Thank you
by: Donna


Thank you for the quick response Lorna. Is your baby doing it anymore? I am hoping he will out grow it. When was the last time she did it? Was that the only symptom? My baby does that downward gaze a few times a day, and he also has a strong right eye gaze. He can make eye contact when on his back, but once he is upright, he automatically goes toward the right. Has anyone had this issue?

I am really hoping this is all developmental and he will out grow this. If anyone has a similar story and a success story, I would love to hear it.

Thank you!


Apr 20, 2013

Dear DONNA AND LORNA

by: Martyn


Right now today my 9 week old is in hospital, exactly the same symptoms as mentioned, eyes roll down flickering while she is on her back, so far we have had CT scan, ECG Scan, blood tests, urine tests and also lumber puncture (removal of spinal fluid for testing), all have came back ok and normal, also they ran a course of anti-biotics on her as a precaution, I’m worried sick and convinced that the doctors just cant diagnose it, also an eye specialist has done a full check with results back as ok, im told not to worry and babies can do things like this, did you have similar experiences?


Apr 20, 2013

Martyn and donna

by: Lorna


Martyn, this is the same. One year on and there is no sign of it anymore for us. Both, It went after a few weeks but one of the nurses said simply that we should try to prevent it from happening in order for her to ‘forget’ how to do it . crazy but it worked . we put a pillow on the change table and had her nap in her bounce chair during the day and fall asleep in our arms before going in her cot at night. When she played on her back, we had a v shape pillow to prop her up. Without being on her back she very rarely did it. In her bounce chair she did it a few times but during this time I watched her every minute. The moment she went into the flickering, I leapt and called her out of it. I didnt know how long it would go on for or what it might lead to so I was always on her?

We also had all the tests and antibiotics, which were in case of meningitis but we refused lumbar puncture for various reasons. We also had an mri scan but that showed nothing unusual. Can you call your baby out of it? Is the baby shaking/seizures or just the eye problem that you see?
Both – are you Uk based or US?

Hope this helps a bit. Lorna


Apr 20, 2013

Reply

by: Donna


Hi ladies. I feel thankful for this blog to know we are all experiencing the same thing. It is so great to hear that your daughters symptoms have dissappeared, Lorna. Martyn, I am so sorry that you are going through this. I was so sick with worry for so long. I looked up Paroxysmal tonic downgaze, and that was very close to what I was seeing. My son also has a strong right eye gaze. He couldn’t (getting better) make a left eye gaze. I went to the opthomologist, then the neuro-opthomologist, then got him a MRI ( I was dying!!!!) and MRI came back normal and neuro-opthamologist said he hopes it something he grows out of. Based on what I read about Paroxysmal tonic downgaze, it looks like he should out grow it. I am feeling optimistic today (yesterday, not so much) that it is developmental. Martyn, keep us posted! Good luck. Lorna, so happy it is better!!!


Apr 20, 2013

Ps

by: Donna


Ps Lorna, I am US based. Also, did anyone experience a right (or left) eye gaze too?


Apr 23, 2013

another question

by: Donna


Lorna (or anyone else that has this same experience) did you child show meet all developmental milestones on time? I am wondering most about smiling and other social developments.


Apr 24, 2013

Update

by: Lorna


My daughter’s diagnosis was benign paroxysmal eye movement disorder. I forgot to say that we also had an eye consultant check her over and he said it wasnt eye related.
I would recommend trying to call your child out of it and also trying to keep them off their backs, as in directly laying down. This is what a paediatric nurse suggested to us and the team at great ormond street also agreed this helped her to stop doing it.
There was no side gaze issues.
A v shape pillow at this early stage works a treat.
We have had regular developmental checks and she always scores very well and has started cruising and now walking quite early. She was picking up little things very fast and feeding herself well too.
Does this help at all? I hope knowing that after 2 months it was all over does help a little bit.
Martyn, what is the latest? We were also in hosp for a week without diagnosis. If you have no dedicated paediatric neurologist there then ask to be referred to one. Xx


May 30, 2013

Rolling eyes

by: Em


Hi, my 10 month old has just started rolling her eyes towards top left… Its really scared my husband and I, I’ve never seen anything like it. The doc has referred us to the hospital so I have to wait for an appointment – the waiting is awful. It’s hard not to let your imagination run away with you and think the worst. I’m so grateful to have found this blog and hear your stories. I’m not writing for anything other than just to relate to you all really. I hope all the little cherubs are ok. X


May 30, 2013

Reply

by: Donna


Hi. It’s great you are taking care of it right away. Note if your child is making jerky arm movements at the same time. If so, get a EEG. My baby was having infantile spasms :( but we caught it early. I don’t know if the downward gaze, or right eye gaze was related. But he started doing something different where he was rolling his eyes and raising his arms up at the same time. I really am not writing to scare you, just to make you aware. God bless all our babies.


May 30, 2013

Infantile Spasms
by: Anonymous


Infantile spasms was the culprit for our son’s eye-rolling.


May 31, 2013

Rolling eyes
by: Em


Hi, I’ve found something called Paroxysmal tonic up gaze. The examples on youtube look very much like what my baby is doing. I’ll probably suggest this to the doc at the hospital. It’s just strange because developmentally (at the moment), she seems to be doing well… She’s started walking and will say ‘hiya’. Also when she has these episodes, she doesn’t display any other symptom. The situation feels quite stressful. I hope it’s something that most of our babies will just grow out of. Thank you for the link on infant spasms…. It’s useful to feel as informed as possible. As a worried mum, I intend to request all the tests possible. Also, my little girl had plagiocephaly and was under the hospital for this… Does anyone know if they’re are any links? X


May 31, 2013

Infantile spasm question
by: Donna


Good luck to all our beautiful babies. To the woman whose boy had infantile spasms, how is he now? Developing normally? I am still in the hospital and scared.


May 31, 2013

Son with Infantile Spasms
by: Suzanne


Donna,

I understand. It is scary. Our son is catching up developmentally but is still behind and probably will be for awhile. He qualifies for free therapy through our county and has PT and ST every week. He’s making great strides. He pulls himself up to a standing position, cruises, is starting to make animal sounds when asked and climbs the stairs. He’s probably at about a 12 month level at 17 months old. But some kids have that even without IS, so we feel blessed. Prayers for your little one!


May 31, 2013

IS

by: Donna


Thank you for your quick and positive reply. If you don’t mind me asking, was he totally developmentally on target before IS? I had some concerns about my son before hand, just wondering if your baby was fully on target before. Thank you so much. I am so happy your baby is making such great progress.


Jun 02, 2013

Development
by: Suzanne


You know, he was definitely not ahead developmentally, but not far enough behind for our doctor to be concerned. At his 6 month appointment, our son wasn’t sitting up yet (but not all babies do). So I would say he was enough on track to not concern anyone, but he also wasn’t pushing the limits, either. He’s also our first born and quite large (26 inches and 16 lbs. at 6 months), so we attributed his delay in sitting up, etc., etc. to that. However, IS may have been a contributor since he was diagnosed with it about a month later.


Jun 02, 2013

IS
by: Donna


Thank you so much for your prompt replies.


Jul 12, 2013

Eye rolling

by: Anonymous


My son started rolling his eyes to back of his head in March. It happened a lot and scared me. I took him to the dr, he said he was fine and to keep eye on it, but that evening he had over 15 episodes in 3mins which I managed to record. He wasn’t responsive, he looked like he was day dreaming and didn’t seem to notice he was doing it.

Before they happened he cried for about 3hrs so he must have felt it. I took him hospital they sent him home without doing anything. Went back to doctors, still wouldn’t do anything, was told to go back if happed again.

2months later it happened again. Was refered this time he seen dr and had eeg last month now waiting for results. Still worried to hell cause he still doing it. Want something to show on results so it can be treated feel lost another 3wks a long time.

Good luck to all you hope you get your answers!


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